Alpha-1 Antitrypsin Deficiency Resources

Recently Diagnosed

• Alpha-1 Foundation’s Guide for the Recently Diagnosed Individual

About Alpha-1 Antitrypsin Deficiency

• Alpha1Health.com (Baxter Healthcare Corporation)
• American Liver Foundation
• MedlinePlus
• National Library of Medicine
• National Organization for Rare Disorders (NORD)
• NIH Office of Rare Diseases Research

Patient Organizations

• Alpha-1 Advocacy Alliance
• Alpha-1 Association
• Alpha-1 Foundation
• COPD Foundation

Social Networks

• Alpha-1 Antitrypsin Deficiency support group (Yahoo! Groups)
• Alpha-1 Association (Facebook)
• Alpha-1 CARE (Yahoo! Groups)
• Alpha-1 Liver Disease
• Alpha-1 Lungs and Life (Yahoo! Groups)
• Lung Transplant (Yahoo! Groups)
• Second Wind Lung Transplant Association
• SpiderSpun.net

Insurance/Financial Resources

• AATmosphere
• Medicare
• Patient Services, Inc. (PSI)
• Social Security Disability

Lung Disease

• American Lung Association

Liver Disease

• American Liver Foundation
• Children’s Liver Disease Foundation
• Cholestatic Liver Disease Consortium

Panniculitis

• Alpha-1 Advocacy Alliance
• Alpha-1 Association
• Alpha-1 Foundation